This evening I took the kids along with me to fulfill one of the Christmas wishes of a beneficiary from the Muscular Dystrophy Association Of Singapore (MDAS).
Out of the many wishes collected for the initiative this time round, I adopted three including two meal requests to surprise the family especially the mom who is the main caregiver so that she could have abit more rest and not have to prepare a meal for that day.
After some coordinating, speaking to the centre management to get a clearer idea on the families background and mental preparation on my part, I made a trip to visit the first family today along with my 3 older girls and a lot of food.
Breaking the ice and surprising the family was the easy part and I got to meet the little girl Xin Lin who was bedridden and hooked up to a machine to help her breathe. She had been diagnosed with Muscular Dystrophy since she was an infant and now at 3 years old she can talk a little but it takes so much effort.
The hard part though was hearing her parents share about their journey and how they managed everything while still bringing up Xin Lin’s older sister who is now 5 years old.
It’s easy to take for granted what we have and it’s easy to overlook the struggles that our neighbors and friends are facing. And as emphasized once again by this family we visited today, creating awareness for the minority is so essential in getting them the support that they need. Sometimes we can’t help because we don’t know. But when you do know, what choice do you then make?
Doing what we did tonight gave us a chance to do something nice for someone else and brought out that kampong spirit within the kids and I. And my sharing of this experience is to hopefully bring more awareness to families with a member suffering from the condition. The financial and emotional support that we can extend can go a long way.